CHIEF Final Meeting · JRC Ispra
The CHIEF Final Meeting took place at the Joint Research Centre in Ispra on 12–13 October 2026. The meeting agenda and materials are available on its event page.
Publication: “Federated analytics for non-communicable disease surveillance in the European health data space”
This scoping review examines federated analytics approaches for NCD surveillance in the European Health Data Space and presents a conceptual framework.
CHIEF 3rd Annual Meeting · JRC Ispra
The third CHIEF Annual Meeting took place at the Joint Research Centre in Ispra on 19 December 2025.
Publication: “Data protection, interoperability and governance assessment tool”
The paper reports results from the DIGA survey and describes assessment of data protection, interoperability and governance among health data holders.
CHIEF 2nd Annual Meeting · JRC Ispra
The second CHIEF Annual Meeting was held at the Joint Research Centre in Ispra on 25 October 2024.
Publication: “A generic framework for the semantic contextualisation of indicators”
The article proposes a reusable framework for describing and linking indicator metadata across heterogeneous datasets.
CHIEF stakeholder engagement at the IDF Europe–WHO Europe technical summit
CHIEF stakeholder activity included the IDF Europe Regional Council and the TEAM WHO Europe–IDF Europe High-Level Technical Summit on Diabetes.
Related publication: “Trusted Data Spaces as a Viable and Sustainable Solution for Networks of Population-Based Patient Registries”
Co-authored by CHIEF contributors Nicholas Nicholson and Sandra Caldeira, this peer-reviewed article presents a sustainable model for connected population-based registries. It is cited in the CHIEF Final Report.
CHIEF at the IDF Diabetes Congress · Lisbon
The CHIEF meeting in Lisbon focused on person-centred diabetes indicators in Europe.
CHIEF 1st Annual Meeting
The first CHIEF Annual Meeting took place on 4 November 2022.
Publication: “The EUBIROD Review of Diabetes Registries and Data Sources in Europe”
Carinci F, Štotl I, Cunningham SG, Poljicanin T, Pristas I, Traynor V, Olympios G, Scoutellas V, Azzopardi J, Doggen K, Sandor J, Adany R, Løvaas KF, Jarosz-Chobot P, Polanska J, Pruna S, de Lusignan S, Monesi M, Di Bartolo P, Scheidt-Nave C, C. Heidemann, Zucker I, Maurina A, Lepiksone J, Rossing P, Arffman M, Keskimäki I, Gudbjornsdottir S, Di Iorio CT, Dupont E, De Sabata S, Klazinga N and Massi Benedetti M, Making use of comparable health data to improve quality of care and outcomes in diabetes: the EUBIROD review of diabetes registries and data sources in Europe, Front Clin Diabetes Healthc, 11 Oct 2021.
Transforming Diabetes Outcomes: the Role of Diabetes Registries at the IDF Europe Symposium, Brussels, Belgium
Prof.Massi Benedetti addressed the need of a EU Diabetes Register at the IDF Meeting organized under the auspices of the Finnish Presidency, Brussels, 14th November 2019.
According to the Official Report delivered by the IDF as a summary of the meeting "In his speech, Prof Massimo Massi-Benedetti, Coordinator, EUBIROD, focused on the role of diabetes registries in transforming diabetes outcomes. He highlighted the fact that registries have a number of different targets, for example, research, epidemiology, quality of care, and that they also have distinct beneficiaries, e.g. PwDs, policymakers, healthcare decision-makers etc. He reminded the audience that in its Resolution of 14 March 2012 (2011/2911 RSP), the European Parliament had called on the Commission to coordinate, collect, register, monitor and manage comprehensive epidemiological data on diabetes, and economic data on the direct and indirect costs of diabetes prevention and management, but that this had not, to date, taken place. Prof Benedetti outlined some of the main problems and potential solutions for the realisation of diabetes registries. He concluded his presentation by calling for the creation of a European Diabetes Register, coordinated by IDF Europe and interested member organisations, together with members of the EUBIROD network and other interested stakeholders, to be funded by EU sources and to have an EU-supported infrastructure. This initiative was widely supported by the audience and hosting MEPs".
The slides of his presentation are available here.
Earlier highlights 2019–20158 stories · grouped by year
20191 highlight
Diabetes Registers in Europe at EASD IDF Symposium, Barcelona, Spain
EUBIROD Coordinators have been invited to present the State of the Art of Diabetes Registers at the IDF Europe Symposium of the Conference of the European Association for the Study of Diabetes (EASD) 2019, to be held in Barcelona, Spain, 16th September 2019.
The program of the meeting is available here.
20183 highlights
ICHOM Diabetes Standard Set presented at IDF Europe Council, Tirana, Albania
The International Consortium of Health Outcomes Measurement (ICHOM) Diabetes Standard Set has been presented at the Council of IDF Europe in Tirana.
Presentation at the meeting is available here.
ICHOM Diabetes Standard Set released on World Diabetes Day
The International Consortium of Health Outcomes Measurement (ICHOM) has released its Diabetes Standard Set. The set defines outcomes that matter most to adults living with both type 1 and type 2 diabetes, which the ICHOM Diabetes Working Group recommends health care providers measure in order to achieve patient centered and value-based care.
The Standard Set has been produced in collaboration with a Global Working Group Chaired by the EUBIROD Coordinators, Fabrizio Carinci and Massimo Massi Benedetti. The document, using the BIRO Data Standards, provides the network with an opportunity to embed new global standards in the BIRO system.
The standard set is available here.
EUBIROD and ICHOM at EU Policy EFPIA Meeting, Brussels, Belgium
The EUBIROD Project and the ICHOM Diabetes Standard Set have been presented at the Meeting "Implementing Outcomes Based Healthcare", organized by the European Federation of Pharmaceutical Industries and Associations (EFPIA) in Brussels. Slides available here.
20172 highlights
Workshop at IDF 2017, Abu Dhabi, UAE
The ethical and epidemiological implications of the EUBIROD project, including deliverables from the Bridge Health Project recently concluded, were presented at the IDF World Conference 2017 in Abu Dhabi, United Arab Emirates.
2nd BRIDGE Health Meeting, Nicosia, Cyprus
The EUBIROD Network gathered in Nicosia, Cyprus, for the second meeting of Task 8.2 of the Bridge Health Project.
In this occasion, the new software NeuBIRO has been presented during a targeted session of the BIRO Academy. High level representatives also joined the meeting for a special workshop on privacy evaluation. A dedicated session explored the uptake of PROMs in diabetes registers and updated the revision of the state of the art of diabetes registers undertaken at the first meeting in Rome.
The agenda of the meeting and presentations are available here.
20152 highlights
1st BRIDGE Health Meeting, Rome, Italy
The EUBIROD Network gathered in Rome, Italy, for the first meeting of Task 8.2 of the Bridge Health Project.
In this occasion, specific working groups have been established in the areas of: a) clinical interpretation; b) privacy impact assessment; c) statistics and IT.
The agenda of the meeting and presentations are available here.
1st EUBIROD Network General Assembly, Guildford, UK
The EUBIROD Network gathered at the University of Surrey, Guildford, England, UK for the General Assembly 2015.
In this occasion, a session of the BIRO Academy on the State of Play of Diabetes Registers has been organized, based upon a network survey coordinated by the University of Surrey. Partners also agreed on their internal governance procedures.
The agenda and presentations are available here.