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2nd BRIDGE HEALTH Task 8.2 Meeting
BEST INFORMATION FOR PERSON-CENTRED HEALTH CARE
Nicosia, CYPRUS, Wednesday 20th - Saturday 23rd September 2017
LECTURES
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Wednesday 20th September 2017
Event I. 8:30-12:30 How to establish a National Diabetes Registry: best practices and lessons learned from international experiences
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Organized by the Ministry of Health for doctors and nurses working in diabetes
Chairs: G. Olympios, MoH - M. Massi Benedetti, HIRS
09:00-09:15 Welcome & Introduction by Cyprus Authorities
09:15-09.30 Diabetes Information in Europe (F. Carinci, U. Surrey)
09:30-09.45 Scotland Care Information Diabetes Collaboration (S. Cunningham, U. Dundee)
09:45-10.00 Diabetes indicators in Israel (I.Zucker, Ministry of Health of Israel)
10:00-10.15 Croatian Diabetes Register (I. Pristas, Croatian Institute of Public Health)
10:15-10.30 Discussion
10:30-11:00 Coffee Break
11:00-11:15 The role of the Health Monitoring Unit and its contribution to the Diabetes Registry (M. Athanasiadou, Cyprus Ministry of Health)
11:15-11:30 Application of the EUBIROD Program in the Diabetes clinics (V. Traynor & A. Charalambous, Cyprus Ministry of Health)
11:30-12:15 Results of EUBIROD at Larnaca Diabetes Centre and Kofinou Primary Centre (G. Olympios & M. Hinnis, Cyprus Ministry of Health)
12:15-12:30 Discussion
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Event II. 12:30-13:30 Press Conference with the Minister of Health
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Event III. 14:00-14:45 Invited Lecture: Considerations on the Multidisciplinary team in the care of Diabetes, M.Massi Benedetti, HIRS
Organized by the Medical School of the University of Cyprus in collaboration with the Nursing
Services for the medical students and registered nurses undergoing specialist training in diabetes.
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Event IV. 17:00-18:30 Invited Lecture: Achieving person-centred healthcare: the role of civil society S.de Sabata, IDF
Organized by the Cyprus Diabetes Association involving regional committees and invited guests
Chairs: S. De Sabata, IDF Europe
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MAIN MEETING
Task 8.2 – Platform for population-based registries: Strategies and tools for secure international data exchange and statistical analysis of a new generation of health outcomes
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Thursday 21st September 2017
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10:00 – 18:00 Privacy and ethics meeting of the Bridge Health Ad Hoc Advisory Panel of Experts.
This session built upon the criteria defined at the 1st Bridge Health Annual Meeting and the subsequent application of the instrument realized by the panel under the coordination of University Tor Vergata. Discussion has been based on the original document “Bridge Health Report on Privacy and Ethics Impact and Performance Assessment” (PEIPA)”. Participation to this meeting has been restricted to members of the Advisory Panel and invited contributors from the Bridge Health Consortium (only for the open session)
Objectives: The final report contributes to WP11 deliverable Task 2 (led by THL Finland in collaboration with University Tor Vergata, University of Surrey and the EUBIROD network): “Comparison of feasibility and quality of performance information calculated from administrative data sets (with and without possibility for register linkages) and population based registries for disease: assessment of legal issues related to the approaches”
10:00-12:00 Open Session: “Impact of Privacy and Data Protection on Health Data Governance”
Chair: M. Massi Benedetti, HIRS – David Smith, UK
10:00-10:10 Welcome & Introduction (M. Massi Benedetti, HIRS)
10:10-10:40 Health Data Governance: Privacy, Monitoring and Research (J. Oderkirk, OECD)
10:40-11:00 Discussion
11:00-11:40 Bridge Health Report: Privacy and Ethics Impact and Performance Assessment (C.T. Di Iorio, Serectrix)
11:40-12:00 Discussion
12:00-13:00 Lunch Break
13:00 – 18:00 Closed Session: “Revision of the Bridge Health Report” (coordinated by C.T. Di Iorio)
This session has been restricted to members of the Bridge Health Advisory Panel on Privacy and Ethics Impact and Performance Assessment
Chair: C.T. Di Iorio, Serectrix
13:00-15:00 Roundtable Discussion
15:00-15:30 Coffee Break
15:30 -18:00 Revision of the Report and Final Wrap-up
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SESSION 2 – DIABETES DATA SOURCES
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13:00-18:00 “Information infrastructure for person-centred diabetes care: state of the art of diabetes data sources in Europe”. This session will examine the result of a survey on the characteristics of data sources storing relevant information in Europe, to be updated in 2017 using a standardized template already tested in 2015
Objectives: To produce a collaborative scientific paper authored by members of the EUBIROD Consortium, based on the document originally produced at the Surrey Meeting in September 2015
Chair: I. Stotl, U. Ljubljana - I.Zucker, Ministry of Health of Israel
13:00-13:10 Welcome & Introduction (I. Stotl, U. Ljubljana)
13:10-13:30 Structure of the survey and results (I. Stotl, U. Ljubljana)
State of the art of diabetes information in Europe. Part I: different types and levels of data sources
13:30-13:45 Cyprus (G. Olympios, Cyprus Ministry of Health)
13:45-14:00 Hungary (S. Ianos, U. Debrecen)
14:00-14:15 Israel (I. Zucker, Ministry of Health of Israel)
14:15-14:30 Latvia (E. Ramuse, Centre for Disease Control of Latvia)
14:30-14:45 Malta (S. Fava, University of Malta)
14.45-15.00 Discussion
15:00-15:30 Coffee Break
15:30-15:45 Poland (J.Polanska, Technology University of Silesia)
15:45-16:00 Romania (P. Gagniuc, Romanian Academy)
16:00-16:15 Slovenia (I. Stotl, University of Ljubljana)
16:15-16:30 Discussion
16:30-18:00 Collective drafting of a collaborative scientific paper (coordinated by F.Carinci)
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Friday 22nd September 2017
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09:00-13:30 “Strategies and tools for person-centred high value care: a new generation of health outcomes and monitoring systems”. This session will present new strategies, solutions and tools to underpin person-centred health systems through a new generation of outcomes and monitoring systems.
Objectives: To present an overview of recent trends in the field of health outcomes measurement and health information, with specific applications in diabetes. To update members of the EUBIROD network and associated partners about recent contributions to international standards.
Chair: F. Carinci, U. Surrey – M.Salt, ICHOM
09:00-9:10 Welcome & Introduction (F. Carinci, U. Surrey)
09:10-10:30 Section 1. Patient Reported Outcomes Measures (PROMs)
09:10-9:30 Results from OECD Ministerial 2017: the PaRIS initiative (J. Oderkirk, OECD)
09:30-9:50 Standardized Patient-Reported Outcomes Measures (PROMs) in Diabetes (M.Salt, ICHOM)
09:50-10:10 The perspective of people with diabetes (S.Michael, CDA, S.de Sabata, IDF Europe)
10:10-10:30 Discussion
10:30-11:00 Coffee Break
11:00-13:30 Section 2. Health Information
11:00-11:15 Results from OECD Ministerial 2017: Recommendations on health data governance (J. Oderkirk, OECD)
11:15-11:30 Report on Privacy and Ethics: Bridge Health Final Deliverable 11.2 (C. T. Di Iorio, Serectrix)
State of the art of diabetes information in Europe. Part II: national audits, registers and surveillance systems
11:30-11:45 UK-Scotland (S. Cunningham, U. Dundee)
11:45-12:00 Belgium (K. Doggen, Belgian Institute of Public Health)
12:00-12:15 Croatia (I. Pristas, Croatian Institute of Public Health)
12:15-12:30 Germany (L. Gabrys, German Diabetes Surveillance System)
12:30-12:45 Sweden (S. Gudbjornsdottir, Swedish National Diabetes Register)
12:45-13:00 UK-England (S.de Lusignan, U. Surrey)
13:00-13:15 EUBIROD contributions to OECD projects 2017 (F. Carinci, U. Surrey)
13:15-13:30 Discussion
13:30-14:30 Lunch Break
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SESSION 4 – DATA ANALYSIS
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Saturday 233d September 2017
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SESSION 5 – EUBIROD NETWORK
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07:00-08:00 Meeting of the Steering Committee of the EUBIROD Network
08:00-10:00 General Assembly of the EUBIROD Network
Objectives: To revise the goals, composition and governing rules of the EUBIROD network. To discuss the way forward on how to implement the results of Bridge Health Task 8.2 in future research activities. To plan new steps on improved data collection and analysis at international level.
Chair: M. Massi Benedetti, HIRS – Z. Metelko, U. Zagreb
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