Second BIRO Academy Residential Course

Brussels, 24th January 2011

Standardized Reporting of
Quality and Outcomes in Diabetes

Welcome from J.Dalli, EU Health Commissioner

Session 1. Why Diabetes Registries?

The Use of Diabetes Registries and Quality Indicators for Quality Development
(Klaus Piwernetz, Munich, Germany)
Why and how to realize and implement a Diabetes registry
(Massimo Massi Benedetti, Perugia, Italy)

Session II – The ingredients of a Diabetes Registry

Managing a Diabetes database: using a Data Dictionary and processing health records
(Scott Cunningham, Dundee, Scotland)
Multilevel collaborative platforms: Linking Diabetes Medical Records to other Sources
(Mark McGilchrist, Dundee, Scotland)
Data Protection and Privacy Issues: Legal aspects
(Concetta Tania Di Iorio, Pescara, Italy)
Data Protection and Privacy Issues: Technical aspects
(Peter Beck, Graz, Austria)
The BIRO System
(Fabrizio Carinci, Pescara, Italy)
The EU HEIDI System
(Tuuli Maria Mattila, Brussels, Belgium)
General Discussion
(Facilitated by J.Azzopardi, Malta)

Session III – What to Expect from a Diabetes Registry

Levels of evidence from Diabetes Registries
(John Lachin, Washington, USA)
Diabetes Registries vs RCTs
(Sarah Wild, Edinburgh, Scotland)
Risk Adjusted Diabetes Estimators
(Fabrizio Carinci, Pescara, Italy)
Population-based Estimates
(David Whiting, Brussels, Belgium)
Research use of Diabetes Registries (I)
(Zeliko Metelko, Zagreb, Croatia)
Research use of Diabetes Registries (II)
(Ulf Lindblad, Goteborg, Sweden)
General Discussion
(Facilitated by K.Piwernetz, Germany)

Session IV – How to plan Diabetes Information Networks: Interactive Session

The plan for Barbados
(Gina Pitts - Ian Hambleton, Barbados)
The plan for China (I)
(Luo Yingying, China)
The plan for China (II)
(Li Jin, China)
The plan for Lebanon
(Hani Dimassi - Mohamad Sandid, Lebanon)
The plan for Tanzania
(Gibson Benard Kagaruki - Zacharia Abisai Ngoma, Tanzania)
The plan for Cuba
(Juliette Navarrete Cabrera, Cuba)
The EUBIROD Cookbook