Second BIRO Academy Residential Course
Brussels, 24th January 2011

Standardized Reporting of
Quality and Outcomes in Diabetes
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Welcome from J.Dalli, EU Health Commissioner |
Session 1. Why Diabetes Registries?
| The Use of Diabetes Registries and Quality Indicators for Quality Development (Klaus Piwernetz, Munich, Germany) | |
| Why and how to realize and implement a Diabetes registry (Massimo Massi Benedetti, Perugia, Italy) |
Session II – The ingredients of a Diabetes Registry
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Managing a Diabetes database: using a Data Dictionary and processing health records (Scott Cunningham, Dundee, Scotland) |
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Multilevel collaborative platforms: Linking Diabetes Medical Records to other Sources (Mark McGilchrist, Dundee, Scotland) |
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Data Protection and Privacy Issues: Legal aspects (Concetta Tania Di Iorio, Pescara, Italy) |
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Data Protection and Privacy Issues: Technical aspects (Peter Beck, Graz, Austria) |
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The BIRO System (Fabrizio Carinci, Pescara, Italy) |
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The EU HEIDI System (Tuuli Maria Mattila, Brussels, Belgium) |
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General Discussion (Facilitated by J.Azzopardi, Malta) |
Session III – What to Expect from a Diabetes Registry
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Levels of evidence from Diabetes Registries (John Lachin, Washington, USA) |
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Diabetes Registries vs RCTs (Sarah Wild, Edinburgh, Scotland) |
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Risk Adjusted Diabetes Estimators (Fabrizio Carinci, Pescara, Italy) |
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Population-based Estimates (David Whiting, Brussels, Belgium) |
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Research use of Diabetes Registries (I) (Zeliko Metelko, Zagreb, Croatia) |
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Research use of Diabetes Registries (II) (Ulf Lindblad, Goteborg, Sweden) |
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General Discussion (Facilitated by K.Piwernetz, Germany) |
Session IV – How to plan Diabetes Information Networks: Interactive Session
| The plan for Barbados (Gina Pitts - Ian Hambleton, Barbados) |
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| The plan for China (I) (Luo Yingying, China) |
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| The plan for China (II) (Li Jin, China) |
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| The plan for Lebanon (Hani Dimassi - Mohamad Sandid, Lebanon) |
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| The plan for Tanzania (Gibson Benard Kagaruki - Zacharia Abisai Ngoma, Tanzania) |
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| The plan for Cuba (Juliette Navarrete Cabrera, Cuba) |
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| The EUBIROD Cookbook |



