1st BRIDGE HEALTH Task 8.2 Meeting

23rd - 24th November 2015


Documents

Agenda
Participants
Minutes

Monday 23rd November 2015

SESSION 1. BRIDGE-HEALTH WORKPACKAGE 8

8:30-10:00 Plenary Session

 Population-based Disease Registries (F.Carinci, U.Surrey)

 WP 8 Task 1. (S.Giampaoli, ISS)

 WP 8 Task 2. (M. Massi Benedetti, HIRS)

 Optimizing EUBIROD reports for routine clinical practice (L. Uccioli, U. Tor Vergata

Discussion

10:00-10:30 Coffee Break

10:30-12:00 Parallel Sessions

Session 1A (TECHNICAL). Revising the BIRO approach

 Blueprint of open source software for population-based chronic disease registers (S.Gualdi)

 Manual of technical specifications for users and programmers (I.Stotl, U.Ljubljana)

Session B (LEGAL). Revising the Privacy Assessment

 Consolidated privacy impact assessment for disease registries (C.T.Di Iorio, Serectrix)

Session C (CLINICAL). Revising the Clinical Use of EUBIROD reports

 Key indicators for targeted EUBIROD reporting (T.Poljicanin, Croatian NIPH)

12:30-13:00 Wrap up from Parallel Sessions

13:00-14:00 Lunch

SESSION 2. THE EUBIROD NETWORK

14:00-17:30 State of the art and potential improvements

 Updating the BIRO data collection (F.Carinci, U.Surrey)

 Large scale Implementation of “My Diabetes My way” (S.Cunningham, U.Dundee)

 PROMS: patient reported Outcomes in Diabetes (D. Cooke, U. Surrey)

 Optimizing EUBIROD reports for routine clinical practice (L. Uccioli, U. Tor Vergata

15:30-16:00 Coffee Break

16:00-17:30 Discussion and brainstorming

Tuesday 24th November 2015

SESSION 3. INFORMATION AND RESEARCH FOR POLICY AND PRACTICE

 8:00-8:30 Steering Committee Meeting

 8:30-10:00 Bridging Activities

 10:00-10:30 Coffee Break

 10:30-13:00 Workplan and governance

 13:00-13:30 Light Lunch

 13:30 End of Meeting