Publications


Books


        The BIRO Monograph
A book summarizing all the results achieved within BIRO Project and currently adopted in EUBIROD Project.

Papers




    Cunningham SG, Carinci F, Brillante M, Leese GP, McAlpine RR, Azzopardi J, Beck P, Bratina N, Boucquet V, Doggen K, Jarosz-Chobot PK, Jecht M, Lindblad U, Moulton T, Metelko Ž, Nagy A, Olympios G, Pruna S, Skeie S, Storms F, Di Iorio CT and Massi Benedetti M, Defining a European diabetes data dictionary for clinical audit and healthcare delivery: core standards of the EUBIROD project, In press, Methods of Information in Medicine, 2015.
    C.T.Di Iorio, F.Carinci, M.Brillante, J.Azzopardi, P.Beck, N.Bratina, S.G.Cunningham, C.De Beaufort, N.Debacker, P.Jarosz-Chobot, M.Jecht, U.Lindblad, T.Moulton, Ž.Metelko, A.Nagy, G.Olympios, S.Pruna, M.Røder, S.Skeie, F.Storms, and M.Massi Benedetti, Cross-border flow of health information: is “privacy by design” enough? Privacy performance assessment in EUBIROD, European Journal of Public Health, 2013 Apr;23(2):247-53.
    C.T.Di Iorio, F. Carinci, V. Baglioni, J. Azzopardi, P. Beck, S. Cunningham, A. Evripidou, G. Leese, K. F. Loevaas, G. Olympios, M. Orsini Federici, P. Palladino, S. Pruna, S. Skeie, P. Taverner, V. Traynor, M. Massi Benedetti Privacy Impact Assessment in the design of transational public health information system: the BIRO project Journal of Medical Ethics, 2009, volume 35, issue 12, pagg. 753-761


Abstracts


   
S.Pruna, A.Bealle, C. na Purti, D.Licaroiu, D.Ocrain, S. Carniciu, C. Ionescu-Tirgoviste
Practical use of the European best information through regional outcomes in diabetes
CONGRESUL ANUAL AL ASOCIAŢIEI MEDICALE ROMÂNE, REVISTA MEDICALÅ ROMÂNÅ – VOLUMUL LIX, NR. 2, An 2012.
   
C.T.Di Iorio, F.Carinci on behalf of the EUBIROD Consortium
Cross-border flow of health information: is “privacy by design” sufficient to obtain complete and accurate data for public health in Europe? The case of BIRO/EUBIROD diabetes registers
EUPHA Conference 2010, Amsterdam, Netherlands, 12th November 2010.
   
F.Carinci, L.Rossi
A European model for the automatic production of standardized performance indicators: the BIRO statistical engine
EUPHA Conference 2010, Amsterdam, Netherlands, 12th November 2010.
   
F.Storms, F.Carinci, C.De Beaufort, M.Massi Benedetti on behalf of the EUBIROD Consortium
Towards a European Diabetes Information System: from St.Vincent Declaration to EUDIP, EUCID, BIRO and EUBIROD. Are we getting closer?
EUPHA Conference 2010, Amsterdam, Netherlands, 12th November 2010.
   
F.Carinci on behalf of the EUBIROD Consortium
A Novel International Framework for Privacy-Enhanced Data Processing, Exchange, and Pooled Analysis of Disease Registers: The European BIRO/EUBIROD Projects
Academy Health Research Meeting 2010, Boston, Massachusetts, USA, June 2010.
   
F. Carinci, V. Baglioni, C.T. Di Iorio, L. Rossi, J. Azzopardi, P. Beck, S. Cunningham, S. Skeie, G. Olympios, S. Pruna, M. Massi Benedetti
A novel framework for the routine production of EU indicators: the BIRO system
European Working Conference on Health Services Research, The Hague, Netherlands, April 2010.
   
F. Carinci, M. Massi Benedetti, EUBIROD Consortium
Monitoring diabetes outcomes across Europe, and beyond: the EU DG SANCO funded EUBIROD project
Abstract Book of the IDF World Diabetes Congress, Montreal, Canada, 18-22 October 2009, D-0721, pag. 242


Posters


   

A novel framework for the routine production of EU indicators: the BIRO system
Poster presented at the European Working Conference on Health Services Research, 8-9th April 2010, The Hague, the Netherlands
   

Monitoring diabetes outcomes across Europe, and beyond: the EU DG SANCO funded EUBIROD project
Poster presented at the IDF World Diabetes Congress, Montreal, Canada, 18-22 October 2009
    ;

EUBIROD Project
Poster presented at the Information Day on the 2009 Call for Proposals of the EC's public health programme, Luxembourg, Luxembourg, 18 March 2009


Third Party


   Diabete: Pistoia nel Progetto EUBIROD
Toscana News, June 2012
   Health for the EU in 20 success stories
European Commission, May 2012
   B.Zander, R.Busse. Coordination with European and International Health Data Initiatives
EUROReach Workpackage 2, March 2012
   B.Zander, R.Busse. Improving International Comparative Patient- and Disease-oriented Research: Access to Existing Data and Success Factors
EUROReach Poster, March 2012
   Diabetes Indicators
ECHIM Project, March 2012
   EUBIROD Project
EU Registry of Projects in Health Information, March 2012
   Newsletter
Centro Studi SID, December 2011
   The EUBIROD project
International Diabetes Federation Newsletter, P.2-3, January 2011
   J.Oderkirk. Health Information Infrastructure Potential, barriers and practices in the secondary use of health data
HCQI Expert Group, November 2011
   B.Zander, R.Busse. Improving International Comparative Patient- and Disease-oriented Research: Access to Existing Data and Success Factors
EUROReach Project Presentation, July 2011
   Carinci F, Di Iorio CT, Ricciardi W, Klazinga N and Verschuuren M on behalf of the European Public Health Experts Workshop on Privacy Protection, The position of the European Public Health Experts Workshop on Privacy Protection on the revision of the EU Data Protection Directive
Response to EU Consultation on the Revision of the EU Privacy Directive, January 2011
   EUBIROD: Dijabetes se u Hrvatskoj liječi modelom koji može biti europski uzor
Metro Portal, January 2011
   Improving Value in Health Care
OECD, Paris, P.90, 2010
   Conoscere il diabete in Europa attraverso le «lenti» dei registri regionali: il progetto Eubirod parla italiano, F.Carinci e M.Massi Benedetti
Il Sole 24 Ore Sanità, P.96-101, March 2010
   European Health Award: Shortlisted Projects
Gastein European Health Forum, October 2009
   "Italian team at Dasman Center for the research on Diabetes"
Arab Times, 2nd June 2009
   BIRO: Better data on diabetes?
Kajsa Wilhelmsson Blog, May 2009
   "Dasman Center offers access to diabetic data"
Al Watan Life,14th June 2009
   "Alarming jump in GCC diabetes cases focus of debate at confab"
Arab Times, 4th May 2009
   "Number of patients on the increase Mideast 'hottest zone' for diabetes"
Quwait Times, 4th May 2009
   Global Monitoring of Quality of Diabetes Care
IDF Atlas, 4th Edition, March 2009
   A good indication from EUCID
Public Service Review, February 2009
   EUGLOREH Project. Diabetes: Future Perspectives
The status of health in the European Union: Totwards a healthier Europe, 2007