The EUBIROD Approach
EUBIROD will actively involve national/regional networks in the collection of diabetes data. The project includes the following activities:
- Data collection: ensuring wide adoption of BIRO while taking into account privacy/security issues
- Epidemiological analysis: adding new functionalities for the delivery of EU standardized indicators
- Technological transfer: providing a toolbox to facilitate the connection process and to remove any obstacles in the use of the system
- Dissemination: training partners “on field” through the activity of a “BIRO academy”
- Evaluation: reviewing major achievements through international experts who will use objective indicators measuring the degree of completeness and the information content of statistical reports
Methods involve the use of advanced statistical routines for the estimation of diabetes indicators using only aggregated data that will be regularly sent by any participating register to a central server. Modern epidemiological techniques for risk adjustment will be used to compute standardized diabetes indicators and differences of observed minus expected, providing a snapshot of the variability across the continent. Progressive extension of the Register will be facilitated through the BIRO Academy, a training package that will include the production of e-learning tools e.g. multimedia and presentations from the Consortium, as well as material for residential courses. Access to all materials produced by the Consortium will be provided through registered access at the project website.
At the end of 36 months, EUBIROD will ensure that:
- the BIRO system is up and running in at least 20 States, including EU Member States, Acceding/Candidate Countries, and EFTA Countries;
- a common framework for the use of standardized measurements is adopted and well understood through specialized training;
- annual EU BIRO Diabetes Reports are routinely produced for the European Commission.